Friday, November 9, 2012

D-Blog Day 2012

Today is November 9, which means that it is D-Blog Day!
Yay!

This year's topic is:
Choose a form of Media Outlet to write an open letter to, such as NY Times, CNN, Local/National Newspapers, TV and why it is so important for them to let the world know that diabetes is more than just being overweight and having too much sugar. It is about reporting stories about Type 1 and Type 2 diabetes. Let them know what kind of things you would like them to write about. If there are specific articles or reports they got wrong, let them know about it! Let’s get it right! 

When I first saw this, it reminded me of the Oprah incident.
I'm pretty sure that all of us remember that horrible episode of Oprah. And to this day, I think all of us have at least some resentment towards Dr. Oz and Oprah. So on that note, I am going to write a letter to all of the  TV producers about what type 1 diabetes is really about.

Dear TV Producers,

Type 1 diabetes is a very serious matter that is often portrayed incorrectly. Most producers show the worst case scenario and won't show the world what type 1 diabetics really do during their day-to-day lives. Instead, you hyper-sensationalize the chronic illness so people are shocked, but want to continue watching your show. You never say anything positive about the advancements in diabetes technology, instead you focus on the negative aspects of type 1 diabetes. None of your TV "specials" about type 1 diabetes are even researched properly, and most of the time, you don't bother to bring in actual diabetes specialists.

If you were only to read on part of this letter, I beg you to read this. You need to do research before you talk about type 1 diabetes. First, all type 1 diabetics must take insulin to function normally. All type 1 diabetics must take insulin and if one diabetic takes more insulin than another, that does not mean that the person taking more insulin has a "worse" version of type 1 diabetes. It simply means that these two type 1 diabetics are different people and have different needs when it comes to the management of their diabetes. Type 1 diabetes is not "preventable...[or] even reversible." Contrary to popular belief, there is not way to reverse or prevent diabetes. You can't just eat some cinnamon and, suddenly, your diabetes magically disappears. And have you ever realized that if you brought in an actual diabetes specialist, not a heart surgeon, you might be able to portray what type 1 diabetes really is. If the people that are on your show can't even explain these things and have no experience with type 1 diabetes, you can never really show the "truth" about type 1 diabetes.

Type 1 diabetes, in fact, does not always result in horrible side affects like kidney damage, amputated limbs, and etc; these horrible things usually, but not always happen to the type 1 diabetics with poor control over their diabetes. Most type 1 diabetics can live relatively normal lives without organ failure or amputations because they test their blood regularly, count carbohydrates, and administer the proper amount of insulin. In my entire life, I have never known or had someone that knew a person with horrible effects of type 1 diabetes. Every type 1 diabetic I know has had their ups and downs with the disease, but none of us have known people with amputations or organ failure because of diabetes. With proper treatment during the day and night, type 1 diabetics can live normal lives at home, work or school, and at social events; type 1 diabetics are not forced to a life in the hospital with organ failure and amputations.

A type 1 diabetic's daily life is not nearly as tragic as you make it out to be. I am am a type 1 diabetic, so I do know for a fact that my life is not a sympathy story. I wake up every morning and test my blood. I eat breakfast and administer insulin through my insulin pump. An insulin pump is a device that has a certain amount of insulin inside it, and you can give yourself insulin with the push of a few buttons. The insulin goes through a tube and goes into your body through a small canula. I test my blood sugar 3 hours later and administer insulin if needed. This process is repeated every time I eat; I test my blood before lunch, eat, count the carbohydrates in my food, and administer the correct dosage of insulin, and etc. I go to the endocrinologist, a doctor that specializes in the endocrine system and diseases associated with it, to check up on my diabetes management and that is that. I don't go to the hospital every day for kidney dialysis. I don't go to the hospital constantly because I need limbs amputated. I go to school, do homework, play with friends and do anything else that a normal person does. The insulin pump and blood tester I use every day are part of my not-so-tragic daily life, and also some prime examples of positive advancements in diabetes technology.

On most TV shows, we learn that there is no known cure for diabetes and that diabetics can only give themselves insulin to control their diabetes, when really there is so much technology out there that helps diabetics control and manage their diabetes. You have already learned about the insulin pump, which lets type 1 diabetics only need to inject themselves with a needle once every three days, rather than having to inject themselves multiple times daily with a syringe. I also have a device called a Continuous Glucose Monitor (CGM) which tests my blood sugar once every five minutes. This CGM can detect blood sugar patterns, so I can fine-tune the amounts of insulin I need to take daily. These devices are amazing advancements in diabetes technology and are truthfully massive steps towards the cure to type 1 diabetes.

If you haven't realized by now that type 1 diabetes is not reversible, a tragic tale, or full of zero advancements in the related technology, you people are as truly incompetent that I thought you were. If you can realize that type 1 diabetics have relatively normal  lives and don't spend their days in a hospital and put a type 1 diabetic on television that isn't wasting away, then maybe you can show a special with the "truth" about diabetes.

Sincerely, 
Sarah Spiller, 
a type 1 diabetic for 8 ½ years.

Well, that is my open letter to the television producers of shows about type 1 diabetes. I hope you guys liked my long rant to these people. 

You can see everyone else's posts for D-Blog Day, and and all of the information about it here.

Happy D-Blog Day!

Wednesday, November 7, 2012

Dexcom Trial: Day Two

Today is day two of my Dexcom trial; let's just say that it has been an interesting day...

Last night I was awoken twice by the Dexcom because I was under 80. It seems like the Dexcom wants to wake me up whenever I am drifting off to sleep. At 3 in the morning-ish I was hovering at 73, so I took 4 glucose tabs and went to bed. I awoke at 7 and checked my graph. I went from 73 to 146. I continued going up to about 230 and didn't go down until lunch.

* later that day *

I was going to get ice cream, so I tested my blood. I reached down to grab my Dexcom from my belt loop, and it wasn't there...

It's just a small gap...
I ran around the house frantically screaming for five minutes, but then I found it on the floor in my room. I had been disconnected for and hour and 41 minutes.

Let me say what we are all thinking at this moment:
Way to go, Sarah.

Moral of Story: I think I need a new storage unit for the Dexcom...

Shout out to Erin:
You rock!~

Tuesday, November 6, 2012

New Stuff

Unless you read my blog posts on Google Reader, you have probably noticed that my blog looks different! (If you are in Google Reader, just click the link that is the title of this post above. It will open a new tab, don't worry!) Yep, I got a new theme. I was looking for something a little nicer, and after a lot of debating with myself, I chose to use this theme because it is orange and has cupcakes! Yay! (Aren't the cupcakes just adorable?) I'm sad to be retiring my llama font banner, but I think this theme gives my blog a nicer feel. C:

And the other new thing I have been waiting for for eight months...

*INSERT SUSPENSE HERE*

I'm on a trial for a CGM!

I'm only on the Seven Plus because I don't think the under 18 crowd can use the G4 yet, but I'm still really happy. I've already done this to my old Vera Bradley ID holder. (It's in Sittin' in a Tree, in case you wanted to know.) I started off at the wonderful blood sugar of 391, and since I had to put in two blood sugars, I tested again. It said 402 and I put that into the CGM. I then realized that you can't put in blood sugars over 400 after looking in the manual, so I tested again and put in a blood sugar of 335.

It is kind of weird to have to keep it within 5 feet of myself; I have to carry it with me just to let the dogs out! As I was typing The above paragraph, I realized I was 20 or so feet away from the transmitter, so I ran over like a speed racer to get it. (At least as fast as a Sarah can go...)

If we don't return it, we have to pay $1000. Needless to say, no one hasn't returned it. 
I also have to document every single thing I eat, how much insulin I give, and any exercise I participate in. I am so excited about that. <insert sarcasm here So far, I haven't done that. (Shhh, don't tell the endocrinologist.)

My mom has to go to the endocrinologist next week to drop off the transmitter and sensor so my endo can analyze the data and then I will go to the endo on November 26, so my endocrinologist can tell us what the data says, fix my pump settings according to the data, and have a prescription written for my own Dexcom.

Moral of Story: Since I know have to robotic parts, I'm half borg, or to quote my mother:

Friday, November 2, 2012

Story Time!

Not so long ago (AKA Friday,) there was a person named me (My actual name is Sarah, but just go along with it.). I was sitting in the car contemplating. Why was I contemplating? Well, I was having blood sugar problems.

* DUN DUN DUN *

I was constantly high and my blood sugar would not go down. First, I changed her basal rate. It went from .675 to .700 units of Humalog. I was still high. Later on, I was laying in my bed; I just couldn't get to sleep. (I was even in a very comfy and warm position!) I tested my blood and I was still high.

*INSERT BLOOD SUGAR RELATED ANGST HERE*

* Ahem... Continuing with the story. *

Then, I decided I needed to wake up my dad; let's just say that he was not happy about being woken up at 12 AM...  After many complaints and lots of whining, I forced my dad to come with me to the kitchen. (My diabetes stuff is there.) I decided to give myself a shot, so I tried to draw up five units of Humalog. As I was putting the insulin in the syringe, it slipped out of my hand and broke. (I know what you're thinking, "Way to go, Sarah!" Well, in my defense, I was tired, high, and it was 12 AM.) After forcing my dad to do the dirty work (AKA clean up the insulin vial,) I grabbed another vial of Humalog. This time, I didn't drop the insulin, and I actually gave myself a shot! *YAY* I changed my site, and it looked normal. I took pictures in my zombie-like state, as any good blogger would, and went to bed. My blood sugars were a little high for most of Saturday, but after that, they came back down.

Moral of Story: I have no clue why my blood sugar was being so annoying. Stupid blood sugar.