Monday, April 14, 2014

#dayofdiabetes 2014

This year, I decided to participate in #dayofdiabetes. This is a social media movement where on one day every year, diabetics on Facebook, Twitter, Instagram, Tumblr, and any other social media platform share everything they think about or do because of diabetes. It was created to show the world that even though diabetes seems like an invisible illness that is rather "easy" to control, it is actually all consuming of your thoughts and actions. #dayofdiabetes let's the world see how much effort it takes to be a diabetic for just one day. It also shows people (including the participants) how a single chronic illness can differently affect every person that has it. (Sorry if that sentence sounds really weird. My blood sugar is in the 400's and wording things when I'm high is not my strong suit.) So here is what I tweeted, retweeted, and could relate to on this year's #dayofdiabetes.


That's 24 tweets from me alone, and I didn't even start until around 11:30ish! I'm sure I could have tweeted a lot more if I had wanted to. And that was a good day. My bad days would have had a lot more tweets and pictures to go along with them. I had a lot of fun participating in this and I also got to explain the hashtag to a few people at my school that asked about it, so it was cool to know that non-diabetic people were also interested in what was happening on Thursday. I'd say it was a success since the goal of the movement was reached- to educate people on what being a diabetic for a single day is like.

Moral of the Story: In the immortal words of Kim when talking about how #dayofdiabetes was supposed to be a simple feat, ""Simple". Ha! Ha ha hahahahahahahapioenaoiepnfdklnaf;ioehaopifehoi;ah."

Did you participate in #dayofdiabetes? What did you think about it?

Thursday, April 3, 2014

Cringing with a Side of Amazingness

This will totally be one of those randomy posts where I just talk about whatever. Because I can do that since this is my blog.

First, let's talk about the fact that I found my old blog today while scouring the internet to figure out why Bigfoot Child Have Diabetes commented on my super angry late night blog post (the best kind of blog post, really,) to say congrats. I was confused. I was pretty sure I hadn't posted anything exciting that has happened to me on here or on twitter. What could I have done? While looking through the vastness know as the internet, I googled my blog's name to see if there had been some other blog post mentioning my blog, or something else of that nature. Guess what I found. I had found my really old and started in seventh grade diabetes blog. I looked at it and cringed. I cringed even more than when I look at my first post on this blog. And that's saying something.

I read through the whole entire thing and laughed at seventh grade moi. I had  my name as nautilus. (I didn't even have a capitalized 'N.' It was cool to type in all lowercase in 2010.) Did I mention that my obsession at the time of that blog's creation was the nautilus? My twitter username used to be 'nautilusofdoom.' (Wait, why did I just share that with the whole world?) I used those text emoticon thingies in almost all of my posts. I made a whole photo album on Photobucket about getting my Contour USB. I don't remember making any of these posts, but I obviously did. Seeing my old blog made me laugh and cringe* and it was a total #tbt in the most entertaining way possible. (I laughed even more when I found my other old blog from seventh grade. I was pretending to be super girly and care a lot about make up and fashion. You can ask any of my friends and I promise they'll tell you that I'm pretty much the opposite of that. I've since given up on trying. I also got a kick out of my attempt to sound vague, but also cool with my tumblr's name. 'Insecure Light,' Sarah? Really?)

#tbt to my first CGM picture on twitter
Well, now let's get back to the whole congrats-on-my-blog-post mystery. After laughing at myself for a while, I finally went on my main blogger page so I could start typing a post about my laugh worthy find. I clicked onto my main blog page and saw that one of the main sources of traffic to my blog was from Meri's blog. I clicked over to her blog and read through her Best of the Betes Blogs post and oh my gosh, my blog was on there! I was in total shock and I was in even more shock once I realized that I had one the art section of the post with my flow chart! (I also feel like this was pretty ironic, considering I'm the least artistic person in my family.) I feel so incredibly honored to have won in one of the categories. I always look at those posts and hope and hope and hope that maybe I will have won in a category, and for that to actually happen is pretty amazing. Thank you so much to the wonderful person that nominated my blog post. You rock.

Moral of the Story: Today has been pretty unexpectedly awesome.

*The most cringe-worthy thing I read on the old blog was this: "I will just post about my life as a diabetic and topics that align with the purpose of this blog." That sounds like a portion of a legal disclaimer or something. Why on Earth would I have thought to say something like that?

When was the last time that you accidentally found something cringe-worthy from your past?

Tuesday, April 1, 2014

The Best Food of All Time

Try not to get overexcited if you love food blogs because I promise that my blog will not be turning into one. I pretty much dislike cooking, but this is pretty much my favorite recipe of all time. I would eat this stuff every day of my life if it was up to me. (Then again, I am also a person that really likes habit, so maybe that's not saying much...)

This mysterious looking green stuff is actually the best food ever.
Ingredients:
  • 6 servings of your choice of pasta
  • 2 medium avocados (peeled and seeded)
  • 1 1/2 cups spinach
  • 1 1/2 cups arugula 
  • 1 packed cup of basil leaves
  • 3 tablespoons of lime juice
  • 2 garlic cloves or 1/4 teaspoon of garlic powder
  • 1 teaspoon of salt
  • 1/2 teaspoon of ground black pepper
Yay for having an organized picture of the ingredients! 
Directions:
  1. Put your pot of water for the pasta on the stove. This will give your water plenty of time to boil, and it will be boiling by the time you finish making the pesto.
  2. Throw everything but the pasta into your food processor. I usually start with the avocados, grind those up, then put in the arugula and spinach, grind those up, and then put everything else in the food processor. 
  3. Take your magical pesto out of the food processor and put it in a small bowl. Then put the sauce in the fridge.
  4. Cook your pasta according to the package.
  5. Strain your pasta.
  6. Put half of the pesto in the bottom of the bowl, put the pasta in the bowl, then put the rest of the sauce on top of the pasta, and then mix it up. (My mom taught me the half on bottom, half on top trick. It makes it 1000 times easier to mix the pasta sauce.)
  7. Eat and revel in the taste of the most delicious pasta* you have ever made and/or eaten.
Extra step: feed some of the leftover veggies to your favorite herbivore.
So this is pretty much my favorite recipe of all time because it includes my favorite fruit, the avocado; it takes minimal effort to make (I'm all about being lazy;) it takes maybe 20 minutes at the most; and it is in the rare healthy and delicious category of food. And technically the sauce has no carbs... (The pasta is a whole different story.) 

Moral of the Story: Yum.

* This is an obviously unbiased statement and if you think this is untrue, you may need to seek help.

And the original recipe came from here.

Tuesday, March 25, 2014

Opinions

Oh written late at night angry blog posts, I have missed you so much. You always seem to be the perfect outlet for my general distaste for stupidiots. I haven't been really annoyed at people for diabetes related reasons in a while, so I really should have seen this post coming. So today's topic that is causing me annoyance involves people's opinions of my diabetes. Let's begin.

If you want to have an opinion of my diabetes, you need to meet some criteria. Let me make this a simple chart of questions and answers, so if you are even attempting to think about having an opinion, you can easily figure out if you are able to have a valid and respectable opinion of the state of my diabetes at this very moment. It's even color coded, just for you!

Just follow the arrows and I promise you'll find your answer in less than 45 seconds!
I made this fantastic and high quality (and by high quality I mean made in pencil, erased repeatedly, traced over in pen and sharpie, then scanned) poster for anyone that has ever been given an unsolicited opinion about your diabetes. It will take the potential opinion giver maybe a minute to figure out whether their opinion should be said and will save you from a lot of annoyance. I really wish that I had thought of this sooner because someone today had the nerve to tell me that I was a "crappy diabetic" because my blood sugar was high. (387 to be exact.) I'm not sure what qualifies as a bad diabetic, but I'm pretty sure that having one high blood sugar during the day does not mean that I'm a "crappy diabetic."

And after he told me that, we then continued to argue over why he can't have an opinion on the matter. I told him that unless you have an actual knowledge of diabetes that is more than a) you used to get low blood sugar occasionally and b) you know that 387 is high, YOU CAN'T HAVE AN OPINION ON MY DIABETES. I attempted to repeatedly explain that no matter how hard I try, I can never have perfect control of my blood sugar. The highlight of this whole argument (for me, at least) was this: "You have your medical devices which do the same thing as your pancreas, so you should obviously have perfect control of your diabetes all the time."

Excuse me? Has your brain ever even thought about the fact that diabetes affects every single person with it differently? I can't just magically tell my pump to figure out my exact I:C ratios, ISF's, and basal rates and then correct everything for me. I go to my endocrinologist every three months for a reason, in case you didn't realize that.

Well now that I have ranted, I feel much better. These posts are really therapeutic. I really do recommend doing this to get out your anger.

Moral of the Story: You probably can't have an opinion on my diabetes. #sorrynotsorry

(And now I should probably go back to doing my homework.)

Sunday, March 16, 2014

Weird

Life has been kind of weird lately. My mom went to the hospital twice because she has a kidney infection (don't worry, she's fine; she just went twice because there was some miscommunication/ misinformation involved with the first visit,) my friend freaked me out all day on Friday, I have a lot of schoolwork to do, my CGM has been giving me some really weird numbers lately, and this week has just been stressful. (But isn't every week stressful?)

I haven't been really productive homework-wise today. (I need to right 6 theses for practice for my AP World History Exam, I need to read over my AP Biology notes, I need to study some math stuff so I can finish my test on Monday, I have to read my AP World History textbook, and I need to work on some stuff for robotics.) I have, however, been productive, internet-wise. I have read through all 517 blog posts on my feed reader. (I may have neglected reading posts for about two weeks. Oops.) It was nice reading everything and getting caught up on everything happening on the internet. Today was pretty much a day for me to do absolutely nothing important and just think. I hate doing anything in silence, so I've been listening to one of my playlists on my phone. I've been kind of obsessing over 8tracks lately, so I put up a condensed version of my playlist on it. Below is the magical widget to my playlist if you don't mind listening to my really weird music taste. (And image credits for the cover go to Delaney Allen.)


In other, more diabetes related news, I went to the endo on Friday as well, and I have an A1C of 7.3% this month. (Apparently, it's the same as last time!) Both my nurse (I only see my actual endo once a year, the other three visits are mixed with my nurse and dietitian) and I were surprised that it was so low, considering that I keep running high in the evening, but it was definitely a pleasant surprise. My A1C always seems to surprise me, so I wonder why I haven't been expecting this kind of thing to happen. We also talked about how the Dexcom G4 was finally approved for pediatric use, and how I have been using my CGM "illegally" for about a year. She asked me how I liked it and was slightly surprised when I told her that I don't take breaks from wearing it. (I guess most teenagers don't like wearing it that much.) We also changed my basals and ISFs because I had four really weird ISFs and she wanted to get those down to only one or two different ISFs and then we brought my basal up, since it was so low before to compensate for my high ISFs. (One was one unit to 35 mg/dL.) Well, that's pretty much it when it comes to my endo visit.

Moral of the Story: I'm hoping this week will be a little more normal. (And normal does, in fact, exist!)

Thursday, February 6, 2014

Talking

I've talked about this before, but I suddenly had a little burst of inspiration to write about talking again. I've heard about so many other diabetics (especially teens) that refuse to talk about their diabetes to their friends, teachers, or really anyone. Some think that if they don't talk about, diabetes will just kind of disappear. Others think that talking about being diabetic will make them seem like an undesirable person to hang out with. I hope I'm not introducing some shocking information to you, but diabetes doesn't go away and it's a part of who you are. You need to accept that and move on with your life. Diabetes does not and will not ever go away if you refuse to talk about it.

Talk about it with your friends. You can get the conversation started by simply testing your blood at lunch. I'm sure they'll ask about it and then you can go from there. You might spend a large chunk of lunch talking about it to explain what the heck is going on with your broken pancreas, but it will be so worth it in the end. Once you get past that awkwardness of not knowing how to bring up your diabetes, you can bring it up and you will benefit from it. Now, when you go on school trips without your parents or a school nurse, you can just quickly bring up how to tell if you are low or high and what to do if you're really low or high and unresponsive. (Hopefully that will never happen, but it's better to do as the boy scouts and always be prepared.)

Your future could be having friends that understand more about this picture than just the headphones! 

Talking about your diabetes also leads to things like you being able to say that you're high without all of your friends looking at you like you are insane. It can also lead to you just casually bringing up the annoyances of diabetes and having people that at least know what you are talking about and not just nodding their heads and pretending to listen. Sometimes they will refer to your CGM as a "Diabetes iPod" because they know that it bothers you. Other times, however, they will be there to listen to you yell about your recent trend of low blood sugars and to show them your CGM graph from the past 24 hours and they will get what you're talking about. Once you break the ice about being diabetic, you friends become much more understanding of what is happening with your compromised endocrine system.

And if for some reason, attempting to break the ice goes something along the lines of, "Eww that's gross. Can you just not talk about it," and they won't compromise or they always crack rude/ offensive jokes about your diabetes, then these people aren't worth your time. It doesn't matter if you've been friends since 1st grade or if you are finally popular because of these 'friends.' If they can't accept and respect all of you: diabetes included, then they aren't real friends. I know that it sucks to have to lose friends because of your diabetes, and it is fine to mad at your broken pancreas for that, but you can't live your life just pushing diabetes to the side.

Whether you like it or not diabetes needs your attention. A lot. And  if you don't give it that attention, you could end up in the hospital because of it. No one wants that. So speak about it. Proclaim to the world (And by world, I mean your friends, unless you wish to broadcast on TV that you are diabetic, then do that.) that you are diabetic. The world wants to know all of you, not just 3/4 of you.

Tuesday, February 4, 2014

The Pin

Every Friday, I wear a certain pin. Sometimes people think it is a tiny blue island from Adventure Time; other times, people think think that it is just some weird blue amoeba. I get questions about it every time I wear it. "What is that?" "Why are you wearing that?" Having people ask questions is the point of wearing the pin. After all, I wear the pin for Blue Fridays.

Blue Fridays is an initiative started by Cherise to raise diabetes awareness. All you do is wear blue every Friday to show your support for diabetes awareness. You might wonder how wearing blue could possibly raise awareness. Well, it's quite simple. People eventually start noticing that you keep wearing this little blue pin, a blue shirt, or even your favorite blue earrings every Friday. Soon enough, someone becomes curious about this and asks about why you wear blue every Friday. Then you explain the premise of Blue Fridays and educate them about diabetes. That's how Blue Fridays work. It seems almost too simple, but that is the beauty of the initiative.

The aforementioned pancreas pin being worn. I recommend buying one.

I love Blue Fridays because it's an easy way for me to teach others about diabetes without being in their faces or wearing a shirt in all caps saying, "ASK ME ABOUT MY DIABETES!!!" Doing that could make you seem just a little too excited about having diabetes. (Unless you're into those kind of shirts. Then go for it!) Blue Fridays let me be subtle, but also informative about my diabetes.

The whole subtlety factor of the initiative kind of helps balance out my not-so subtleness. Once you ask about it, I'll either give you a quick one sentence summary of why I wear the pin, or I'll go on and on about stuff if I think you'll actually listen. I pretty much do the same whenever someone asks about my pump, CGM, or blood tester. (So you've been warned if you ever see me in public and dare to ask about any weird looking thing attached to my body.)

There's nothing more I can really say about Blue Fridays, besides that is a fantastic initiative that anyone and everyone affected by diabetes should participate in.


Saturday, January 11, 2014

Most Used Word in This Post: Whoa

I hope you weren't expecting anything magical or mind-blowing post-wise now that I've said I will attempt to start blogging again. Nothing astonishing is happening in my life diabetes-wise. I go low and high sometimes, but whats new? I'm finally getting a new medic alert bracelet. (Mine has rust on it, so it's probably time to get a new one...) Is that exciting enough for you? And while I'm on the topic of getting a new medic alert bracelet, do you think I should get the blue, purple, or black version of this bracelet? I'm leaning towards purple, but I'm always indecisive, so your opinion would be appreciated. (Unless you find a better bracelet that I don't have to take off in the pool or when doing physical activity. Then suggest that.)

I'm currently listening to music and attempting to figure out what important, relevant things I should type. So far I've come up with nothing. I'm currently flat lining at 167 and not covering it since my blood sugar ends to go done overnight and if I cover anything below 200, I tend to go low. I should probably either lower my nightly ISF or basal. Since it goes down even when I don't cover, I might lower my 12 AM to 6 AM basal. 

I also finally got a new pump clip for my pump. Animas's pump clips break a lot (at least for me,) so we have to order them frequently. You would think my dad would have ordering supplies from Animas down to science since I've been diabetic for ten years now. WHOA. WAIT. THAT'S WHAT I SHOULD TALK ABOUT.

I've been using all of this stuff for a long time.


I have been diabetic for 10 years. A decade. 2/3 of my life. WHOA. That is a long time. We don't remember the exact date I was diagnosed since I was diagnosed when I was 5 years old. I just remember that it was during winter break and I the one thing I remember is forcing the doctors to let my mom give me my first shot. It's ind of insane that I don't remember life without diabetes, but I think that is probably a good thing. After all, I can't remember what being "normal" feels like, so I have nothing to look back at a remember how great it was being non-diabetic. I guess diabetes is pretty much part of my personality since it's been around most of my life. 

If you do the math and assume that I test my blood 6 times per day (which isn't true, but works out for days when I tested more because of lows, which balances it all out,) I have tested my blood 18,980 times.I have changed my pump sites 1,096 times.That is a lot of plastic and needles. I guess you could say that diabetes isn't really helping America's excessive trash problem. 

It amazes me that during my ten years of being diabetic, I have only been to the hospital twice for diabetes. I was in the hospital once for my diagnosis in kindergarten and then in the hospital in fourth grade because I was throwing up and had ketones. (Thankfully I have zofran to avoid that situation now.) I remember a doctor or nurse telling me that she was impressed with me because I haven't been to the hospital as a teen for diabetes, since so many teens go to the hospital for having excessive highs and ketones. That has stick with me and makes me kind of proud. (But don't feel bad if you have been to the hospital as a teen for your diabetes; I completely understand the suckiness of diabetes burnout and sometimes diabetes is just really annoying.) That's all that I can really put into words for now.

Moral of the Story: WHOA

Tuesday, January 7, 2014

Is Anyone Out There?

Hello! Is anyone out there? (Picture me on the top of a mountain yelling into the distance for the intended effect.)

Oh, did you hear someone yelling that in the distance? That's just me seeing if anyone is on my blog anymore, considering I haven't posted anything since, you know, November of last year. (!) After posting my rant, I realized that there was so much irony involved with that post because I was complaining the day before Thanksgiving. (Way to go, Sarah.) I've been thinking a lot (Sorry about that unrelated, but humorous link. My lit teacher showed us that in class one day and I just can't forget it.) about blogging lately.

I've realized that blogging about diabetes can get boring sometimes, so I tried blogging about clothes I like. That was boring because there is only so much you can say besides, "OMG! That is totally adorable."* about clothes and shoes and stuff. And it didn't seem really authentic or exciting to me because I don't actually own any of the clothes I liked, so I couldn't really post any pictures or original content. (sad face) I tried just blogging about my life. That's boring. My life isn't that exciting. I've been using Tumblr for posting Animal Crossing stuff. I love reblogging pictures and I do it when I have nothing else to do, but there is still a limited amount of stuff I can put on Tumblr. 9/10 of it is screenshots from the game. (Which is fun to do, but just doesn't satisfy the urge for me to actually blog.) So all of this experimental blogging has led me back here, to my baby, this blog.

I'm back, wearing a Camp Kudzu shirt, a Dexcom sensor on my left arm and a pump site on my right
arm. Bonus points for me because I'm also wearing my medic alert bracelet and my blue bracelet from
Camp Kudzu as well.
I've been blogging here, albeit kind of inconsistently, for 2 years now. I can tell how much I've changed since my first post back in December of 2011 after Anna (my sister) was diagnosed with diabetes. I can tell you that I cringe a little every time I read it, but I guess that is just a reminder of how different I am now. I am now a sophomore in high school, a self proclaimed science nerd, a person with actual friends, and just amazingly different from my eighth grade self. I guess I'm back here because this is my own little home on the internet.

I definitely want to work on being on here more often and participating in the #dsma chats on Wednesdays. (I'll be there tomorrow, I promise.) We'll have to see how long I can keep up with blogging on here consistently since the six week FRC build season has begun again! I'm going to be working on a website for our team and scouting, as usual. We're having a competition in late March, so I'll be busy at least until the last week of March, if not longer depending on how that competition goes. I'm also going to Disney with my school in February, which is going to be one of the best trips I will ever go on. It's pretty much 5 days of fun with my friends without parents. (I love you Mom and Dad, I promise!) Needless to say, I'm quite excited about that. Stay tuned for a blog post about that later.

Well I guess this means that I will be back in the swing of things, so I'll be back to post more soon!

Moral of the Story: I'm back. And once again, I'm still not wearing black.

* Not an actual quote, but look at this board on my Pinterest. It's the same comments over and over again.

P.S: If you have any tips for diabetics going to Disney or know about any blog posts talking about going to Disney, please tell me in the comments. I would really appreciate it.

Wednesday, November 27, 2013

A little yell-fest.

Sometimes, people annoy me to no end and no matter what I do, I just can't deal with them. So, I end up ranting and this happens:

Here's a list of things that I just really want to yell at the world right now:

a) Stop telling me about how your uncle has type 2 or how you friend's cousin's aunt's best friend died of complications. I don't really care. You telling me about how other people have died from the chronic illness I deal with every day of the year does not help me; It makes me feel like crap. I already worry if I'm even gong to wake up the next morning sometimes because of a sneaky low, so telling me about the unfortunate events your family members have gone through does not motivate me to be a better diabetic. It also doesn't help me 'connect' with you. It makes me want to escape from your presence as soon as possible.

b) DO NOT MAKE DIABETES JOKES IN FRONT OF ME. I do not care if you thought it was funny; joking about eating candy giving you diabetes does not lighten the mood. It just perpetuates stereotypes about diabetes and makes more people look at me oddly when I mention being diabetic.

c) Do not hesitate to give me candy because your friend would, "Eat whatever she wanted and then dial in more insulin since she was a bad diabetic, as you look at my insulin pump." I'm not your friend and eating then giving insulin through an insulin pump is not being unhealthy/uncontrolled: THAT IS WHAT A PUMP IS SUPPOSED TO DO.*

d) Don't tell me about how your friend had "brittle diabetes" and make jokes about it around me. There is no such thing as brittle diabetes and making diabetic jokes is insensitive and cruel. (See b.)*

e) Think before you say something rude and insensitive.

Moral of the Story: Rant = Over (For now, at least.)

*My current Spanish teacher did both of those things and I dislike her immensely for it.

(Also, I'm counting this as my kind of sort of post for the DSMA blog carnival for November; this rant applies to the topic. Here's the required text: This post is my November entry for the DSMA Blog Carnival. If you would like to participate too, you can get all of the needed information from here.)
 

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